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The NF1 Adolescent, Young Adult, Adult Glioma Registry is a research program supported by the National Cancer Institute (NCI). This program aims to reach adolescents and adults with the genetic condition NF1 and a newly diagnosis of glioma to share their experience. Individuals who join will share information about their diagnosis. The information shared by people living with NF1 and glioma, their caregivers or their care team will be organized in a way that allows researchers in the NF1 field to look for patterns across a community of people that we hope will point to answers for each individual.

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160 East 53rd St, 2nd Floor, New York, NY 10022

Email:  / Tel: 866-886-9807 / Fax: (929)321-5028

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